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Posts tagged ‘saying goodbye’

The Next Adventure…

Dear Reader,

First, I want to thank you for coming on this journey with me. When I arrived at the three year mark of my diagnosis and wasn’t dead, I knew I wanted to do something worthwhile with my life. To make a difference. To leave something behind so that when I did die, I’d be able to feel a little less helpless about it. I wanted to write a book. I wanted to write a series of letters to my Lochlan so if I wasn’t around to teach or guide him, his mother’s voice could still resonate in his life. When it was suggested I write those letters as a blog I was hesitant. I didn’t read blogs. I didn’t know blogs. It felt insincere to join a space that I had no knowledge of, or even, real interest in.

When I decided to move forward I did vast amounts of research. I took an extensive New York Times course and I made countless notes on what I thought worked for other bloggers and why. The publishing of my first post was thrilling because I’d never done anything like it before. My voice was “out there”. I was no longer anonymous or protected. I had allowed my story to be public and I had made myself accountable to that persona.

Leah Lee  002In the meantime, I found I loved writing. I loved the opportunity to be honest and reflexive. I loved connecting with people, both strangers and close friends but, most of all, I was grateful for the catharsis. Writing made me feel less afraid. Every post I published was one less thing I would never be able to say. The process of creating the world of ‘In Case I’m Gone’ gave me a power I no longer had in real life. It allowed me to be in charge of my own story. It became less about what was happening to me and more about what I could learn from it. Writing, and hearing from those who were reading, made me feel less alone, less panicky, less fearful that soon there would be nothing left of me than a picture in a frame. Everything I published became a reminder that I had lived. That I was real. That I’d loved and cared and made mistakes and learned from them all.

underwood picWhen I was approached to write this blog as a book I was thrilled. It was what I’d hoped for. The opportunity to write my story in a forum I really understood. To leave a part of me behind. To be able to look back on my life and feel as if I’d done something real, something tangible. What I didn’t realize at the time was how long it would take to write that book. How difficult it would be to honor someone else’s idea of how it should look and feel while still making it my own. It took me almost three years to get it right. To have a book that really felt like me. This wasn’t some fictional character’s story. This was my real life and I had to do it justice. It had to be exactly right.

Though I continued to write the blog I found it was a real effort to keep the two things separate. I’d have an idea about something and think, is this a blog or a chapter? Is it on message? Does it serve a purpose? Would anyone care? Lochlan_McGowan-152It was a crazy amount of work and, I’m not ashamed to say, there were months where I wasn’t sure what I was even doing anymore and the book would sit completely dormant. When everything clicked last summer I was able to rewrite the book in it’s entirety in just over three months and, after two more of rewrites for my agent, by January we were ready to submit to eight different publishers.

I’ve never worked harder on something in my life. I’ve never done anything as intimate or daunting. I put my heart and soul into those pages and it felt right. In many ways it made my struggles feel worthwhile. As if coming to terms with my own death I could potentially help others live a better life. It felt hopeful and personal and, dare I say it, successful. The day I finished I cried. I cried my eyes out from relief and exhaustion and pride. I’d done something, something real and, at the time I said, “Even if the only person who ever reads it is Loch. It’ll be worth it.” 

photo copy 2Little did I know how true those words might be. As of now, all eight publishers have passed. Passed in the most glowing, complimentary way but, passed all the same. Apparently everyone loves the book but doesn’t know how to sell it and in a world of marketing and branding and everything being for sale this isn’t particularly good news. I can’t properly express the greatness of my disappointment but, I can say, I’m almost positive it’s not the end of that tale. The outcome may not be what I’d hoped, but the product is. I’ve written a book I’m truly proud of and, hopefully, someday many of you will want to read it. For now, I have to be resigned to it sitting on a shelf.

Which brings me to today. I haven’t been writing much lately and, though I could blame it on a million “busy” things, I’ve come to realize it’s because I’ve reached a crossroad. The completion of my book, though not culminating in the desired result, still represents the end of a journey. A journey I started in 2011 and one that’s now reached its’ conclusion. Lochlan is finally at an age where he’ll remember many of things I’ve said. He’s old enough that he might actually get to know me. I’ve made a singular impact on his life and, even if I haven’t, I’ve left a tangible part of myself behind in my writing. No matter what happens to me now I’ll have existed for him and, honestly, that’s all I ever wanted.

IMG_2326I am called to something new. I’m not exactly sure what it is but, until I take my foot out of this world I’ll never be able to firmly plant myself in another. I have a million things to say and I don’t want to feel boxed in by a “brand” or “message”. I’ve loved writing from the perspective of a mother who’s dying because, I am and I will but, these days I feel drawn to tell a different story from a different perspective and, if I’ve learned anything from being sick it’s that you have to listen to your heart. I could write ‘In Case I’m Gone’ until I was, but for now, I’m actually here and I owe it to myself to see where the next road leads.

Thank you for supporting me. For listening to me. For reaching out and sharing with me. I wish you luck and love and success on your own journey. Hopefully, sooner rather than later, I’ll be writing for you again but, this time from the pages of a book, the dialogue of a movie or, even, from the mouth of a politician who believes, as I do, that we as a people can do better than we are.

I thank you from the bottom of my heart for supporting me as I found my voice. I promise to try and do something truly worthwhile with it before I go.

All my love,

xo Leigh

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Perspective

I recently went to see the most recent movie from Nicolas “The Notebook” Sparks. I was going with my parents so we settled on Safe Haven with Josh Duhamel and Julianne Hough as a film we could all agree on. I wasn’t expecting much. I like romances but Sparks’ stories are pretty predictable and I find I generally waver between pleasantly entertained and slightly eye rollie. The only exception to this rule so far would be Ryan Gosling and Rachel McAdams in the aforementioned Notebook. The scene when they’re on the floor of the old plantation house elevates the film well beyond any typical feel good romance. Anyway, Safe Haven was exactly what I was expecting and was enjoying it well enough until I found I was becoming increasingly emotional. By the end of the film I was so overwhelmed I went to the bathroom and bawled my eyes out. The whole experience got me thinking about how our reactions vary so drastically depending on our perspective. The film had a different affect on me than everyone else in the theatre, except maybe my mother who was seeing it through my eyes.

Safe Haven (SPOILER ALERT) is about a young woman who escapes her abusive husband to find herself in a vacation town on the coast of South Carolina where she meets a handsome widower and his two adorable children. It’s relatively straightforward. She’s got trust issues, he’s still dealing with the struggle to move past his beloved wife, they fall for each other, love conquers all and, after her crazy ex-husband gets shot in the chest with his own gun, they live happily ever after.

safe havenThe thing is, I was supposed to be rooting for the couple. I was meant to see her fill the void left by the children’s mother. I was to hope she’d trust this marvelous man – only alone by a cruel trick of fate – and cheer when she finally let her guard down enough to see that not all men are bad and that she was worthy of love. As I followed the plot however, I became increasingly aware that the character I was most associating with was not the main girl, or the husband or even the children. The character I was projecting onto was the dead mother. For obvious reasons the mother was the character I found myself most connected to. There’s a scene where Josh explains his son “remembers his mother” while the younger daughter just “remembers the idea of her”. It was supposed to make me see that if Julianne could win over the son, the daughter was already hers and everything would just fall into place. I found the entire thing devastating. Loch is younger than the daughter in the film and I know should something happen to me now, he’ll never truly remember me and another woman will easily be able to take my place in his heart. The son in the movie is older, say 11, and he’s angry and confused by his mother being gone but also by his Dad’s interest in a new woman and I found that concept equally unbearable. But, because this film is about two people falling in love and not the story of how people deal with grief, after a few short scenes of minor tween attitude, the boy is equally won over by the successor and ready to move on. Nice for the child. Nice for the Dad. Nice for the new girlfriend. But I’m still sad for the dead mom.

Did I mention the dead mother shows up to befriend and get to know the replacement. Yep, so there's that too.

Did I mention the dead mother shows up to befriend and get to know her replacement. Yep, so there’s that too.

At one point Josh Duhamel looks through a stack of letters in his wife’s old office which has been left like a shrine. It appears the mother wrote a collection of letters to be read by her surviving family members at key moments in their lives, “To My Son on his Graduation” or “To My Daughter on her Wedding Day”. Those letters, all sealed and waiting, are there to make us feel for the husband, for the burden he’s carrying and the job he’s now doing alone, but I was weeping away in my seat for the woman who wrote them and what she had to leave behind. Later in the film when that same building burns to the ground (thanks to the unbalanced ex) and I wasn’t worried for the child who had to jump from the roof or the female lead wrestling her ex with a gun, I was worried for the letters. Those painstakingly written last hopes and dreams. The final thoughts of a mother who had to leave her family but wanted them to know she was still with them. I kept thinking “Save the letters! Save the letters!” and when they didn’t, I was a wreck.

safe haven with kidsAs it is with these kind of books and films however, there was a loophole. The letters, which were stored in a metal desk, were discovered intact when the husband roots through the debris after the fire. At the end of the film Julianne’s character, sitting on a beautiful, old tree swing, is given one of those letters. The letter is simply addressed “To Her”, meaning the woman who comes after, the woman my husband has chosen to love. As Josh and the darling moppets fish in the warm Carolina sun Julianne reads the letter. The dead mom’s voice over wishes her love and joy. She says she’s happy her son will have a mother and her daughter a confident. She says that she knows her husband must really love her because she’s reading this and she’s now able to move on because she knows her family’s taken care of. Julianne looks up, her eyes lock with Josh and they stare lovingly at each other. Their happy ending is all but guaranteed and all I could think of was the poor dying woman who’d been reduced to a disembodied voice.

Life is perspective. We hear in songs what we’re experiencing at the time. We react to words people say with the spin we feel in our soul. Someone having a baby is great news unless you just had a miscarriage or have been trying unsuccessfully for years to get pregnant. Getting an expensive present from your husband is lovely unless you know your family’s struggling with money. Birthdays make some people depressed and other people, like me, super happy. Our take on things is amplified by how we already feel. I was happy for the couple in the film but I didn’t care about them like I did for the woman who had to say goodbye before she was ready.  I’m not feeling as noble as she was about being replaced, though for the sake of Sean and Loch I know eventually I might have to adjust.

safe-haven-julianne-hough-josh-duhamel2There was one moment in the film I really appreciated. A second where they took a moment from courting to honor the memory of the person who was gone. The couple are at a particularly romantic location and Julianne asks Josh if he used to bring his wife there. He says yes and admits that for a while he tried to avoid places that reminded him of her because he thought it would be easier. He says he tried to put her from his mind, to not think of her… but he realized that wasn’t fair to her memory. That if he wasn’t remembering her, who would? He says, “She was wonderful and doesn’t deserve to be forgotten.”

Should I go, I would want Sean to find love again. I would want him to be happy. I would want Loch to have someone to love and mother him, to hug and kiss him and tell him everything was going to be ok. I wouldn’t want them to be alone but the thought of someone taking my place kills me. No matter how healthy it would be for them, I’m not ready to be forgotten. Right now I still believe I’ll beat my disease but, should I go down hill, I can see softening to the idea of being replaced. I can imagine a time where I’ll be at peace with the thought of simply being a memory and, with all the letters I write to Loch, perhaps I should take the time to write one to “Her” as well.

Sometimes the right thing to do is also the hardest. It’s all a matter of perspective.

xo leigh